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KARACHI, Oct 17 (APP): The Health Department, Government of Sindh, in collaboration with the Hemophilia Welfare Society Karachi (HWSK), inaugurated the Annual Hemophilia Prophylaxis Therapy for the fiscal year 2025–2026 at the Hemophilia Treatment Center, Nazimabad.
Dr. Durenaz Jamal, Secretary, Sindh Blood Transfusion Authority (SBTA), graced the occasion as Chief Guest, marking another significant milestone in Pakistan’s journey toward sustainable and inclusive care for individuals living with hemophilia and other bleeding disorders.
The ceremony celebrated the first annual administration of non-factor and clotting factor prophylaxis therapy for 42 registered children, including two with Hemophilia B (Factor IX deficiency) — one of whom is Pakistan’s first known Hemophilia B child living with a cardiac condition.
This initiative continues the Sindh Government’s visionary 2022 decision — the first of its kind in Pakistan — to provide publicly funded prophylaxis therapy for people with hemophilia and bleeding disorders. Implemented under the Grant-in-Aid scheme through a public-private partnership with HWSK, the program ensures equitable access to life-saving treatment, diagnostics, and rehabilitation across Sindh.
Raheel, Founder and CEO of HWSK, expressed heartfelt appreciation to the Health Minister, Secretary Health Department, and Dr. Durenaz Jamal for their steadfast leadership and continued commitment to the hemophilia community.
“Dr. Durenaz Jamal is truly a queen and an angel for the hemophilia and bleeding disorder community,” Raheel said. “Her compassion, leadership, and tireless dedication have turned hope into reality for hundreds of families who once lived in fear of untreatable bleeds and lifelong disability.”
He further stated:
“Today, we begin the first annual prophylaxis dosage for 42 children out of 1,455 registered patients. These 42 are part of 342 pediatric cases in the 2025 registry. Every patient deserves such life-saving care, and we remain hopeful that with the government’s continued support, more patients will be enrolled gradually or annually under this program.”
Raheel reaffirmed that HWSK, as a patient-led organization, continues to bridge critical gaps in treatment access, awareness, and healthcare training — especially at district-level hospitals where hematology services are limited. Through its Hemophilia Wards and Treatment Centers, HWSK is delivering comprehensive, multidisciplinary care aligned with World Federation of Hemophilia (WFH) standards.
In her address, Dr. Durenaz Jamal, Chief Guest and Secretary, SBTA, commended the Sindh Government’s leadership in prioritizing rare diseases and recognized HWSK’s tireless advocacy and service:
“The Sindh Government’s initiative for hemophilia and bleeding disorders reflects both compassion and foresight,” she said. “This is not only a provincial achievement but a national model showing that rare diseases deserve equal priority in Pakistan’s healthcare system.
Through such partnerships, we are saving lives, restoring dignity, and inspiring change.”
Concluding the event, Raheel reaffirmed HWSK’s dedication to ensuring that no patient in Sindh is left untreated or unsupported, expressing optimism that continued government collaboration will expand treatment coverage and strengthen the province’s hemophilia care infrastructure.